This article has been published in the British Medical Journal (BMJ 2004;329:1176 [13 November], doi:10.1136/bmj.329.7475.1176). So if you are citing it, please do so accordingly. Well... They seem to have had a GCSE student re-write it, so if you want to quote this superior version instead, that would be your prerogative...
Chris was always climbing the fence. It was tall, a mosaic of chain-link and climbing weeds, about eight feet, and surrounded the euphemistic “garden” on three sides – the fourth being a three-storey red-brick ward. The ward was a home of sorts to a dozen people with learning disabilities and challenging behaviour and, similarly, a half-dozen nurses. Chris’s most prominent behaviour was “absconding from the ward”, a curiously circular reason for his admission and an activity he engaged in quite successfully on a daily basis.
Absconding was more often than not preceded by a few minutes of artfully presented nonchalance, entirely cloaking him from the watchful eyes of the nurses posted strategically about the place looking for, and only seeing, those behaviours listed in the various reports and management guidelines currently in action. The abscond itself was never witnessed. By sheer well polished sleight, Chris would fade imperceptibly from the consciousness of the assembled staff and then appear, as if conjured from ether, running full-tilt away from the fence.
The staff would snap into action. Blood, previously thickening in our veins, would course effervescently around our bodies. A unified flock-consciousness would drive us towards our joint and single purpose: to catch Chris and bring him back to within the confines of the fence.
To catch Chris.
Our prey stood in excess of six feet and, with daily practice, had developed both the athleticism and gait of an ostrich. He could turn in an instant and be suddenly careering in a completely different direction with no evident change in speed. He could slow down and speed up with no suggestion of inertia or momentum. His flight, essentially, was Brownian.
We would fly from the ward like light streaming from an opening door. We had a purpose. We had a plan. Roles were never discussed but somehow we knew to break into smaller units and try to bisect Chris’s unknowable path. We would run at break-neck speed towards him as if locked onto him like missiles. We would run orthogonally to limit the available directions he might take. We would unspokenly gather volunteers to the chase as if in a stampede. We would hide behind trees.
Catching Chris, despite the iniquity of numbers, invariably took upwards of an hour. Pursuers would retire from the chase exhausted, or perplexed. Sometimes entire shifts would change over the duration of the hunt. Ultimately, however, Chris would be apprehended in a frenzy of arms, legs and divots, attracting staff and onlookers like flies around a kill. Only partially subdued he would be guided, in a ruck, back to the ward where more often than not he would be carefully watched for the rest of the day while he returned our gaze repackaged as a scowl.
I don’t know how it happened. Nobody remembers, if they ever knew.
Chris had breached the fence again and was high-tailing it across the grounds. Somebody went to fetch him back. The mood was completely different, completely at odds with the usual galvanizing sense of mutual excitement. Perhaps we no longer cared. Perhaps, somehow, we were inspired. Our solitary staff member didn’t pursue Chris. He didn’t barrel after him like a Pamplona bull. He just ran. Within a few minutes he was shoulder-to-shoulder with Chris and running alongside. And they kept running. They ran for a further ten or so minutes and then returned to the ward. Nobody laid a finger on Chris. Nobody said a word. There was a ten-minute run and then home.
There were no absconds after that. Just runs.
Deaf services often have a considerable number of policies regarding communication. These documents are intended to cover a variety of needs, but the one thing they all have in common is the access to information and discussion for the staff and client groups with their variety of communication modalities, registers and systems.
Often, however, the assumptions held by staff - and the culture and attitude of the institution - fail to yield the equal access to information and discussion which we would like to believe we foster.
The main area in which we fail is the use of interpreters in meetings.
Staff always try hard to make sure enough communication support is provided by interpreters. This of course is great, and we pride ourselves on this and criticise other services for not providing interpreters themselves. However the way in which we use interpreters gives rise to a major problem which is an inconsistency between philosophy and practice:
1 Hearing staff believe that, regardless of their level of BSL competence, the presence of an interpreter allows them to ignore the signing policy - which usually states, in its simplest form, that all staff should sign when a deaf person is present. Rarely does it say that staff may disregard the signing policy in this instance. So despite the presence of an interpreter all staff should aim to sign in the company of a deaf person.
2 Unfortunately, the vast majority of qualified staff are usually hearing. Thus, the discussion is inevitably led by hearing staff. A problem arises when
i) Those hearing staff are not signing and
ii) They are not respecting “interpreter-time” (the delay between the endings of the spoken utterance and the signed translation). In failing to respect interpreter-time, hearing staff respond to each other immediately after the other person has stopped speaking. This means the deaf people present are not able to contribute to the discussion on equal terms with the speaking people. This is why I am making a distinction between access to the information and access to the discussion. Current practice allows deaf people access to the information, but it is impossible for deaf staff to access and contribute to discussions to the same extent as staff who are not signing.
3 On those occasions that deaf staff do contribute, it is equally important for them to respect interpreter time to allow equal access to those who do not sign.
4 Signing policies often state that everyone’s choice of communication modality and system should be respected. However it is extremely difficult for hearing staff who may want to sign to do so. There are a number of reasons for this:
i) In any meeting there will be hearing staff with a range of signing competencies, and so most staff will be in the presence of others whose signing skills far outshine their own. When those (usually senior) staff refuse to sign, the person who wishes to follow policy and sign for themselves is made to feel ridiculous as they are singling themselves out. Also they inevitably wonder whether their beliefs about signing for themselves are correct - after all senior staff with advanced signing qualifications are not doing so.
ii) When other staff members who can sign are not doing so, a person who believes that he or she should be signing for themselves may often think that the other staff members feel the same, but have other reasons to avoid signing themselves. In my experience a hearing staff member signing for him/herself can project their anger that other people are not signing onto the other staff, and this is then experienced as extreme hostility from the signing hearing staff who choose not to sign. This feeling can be enough to stop the person signing for themselves. It is also possible that other staff actually are hostile to the signing hearing staff member, as they are being confronted with their own guilt about not signing, or their own fears that their signing is not very good.
iii) It inevitably feels strange to sign to a hearing person who does not sign and so does not directly understand what is being said. This is especially so for signing hearing staff. This feeling is compounded by being the only one.
iv) Initially it is difficult to sign while listening to one’s own signing being voiced over as this is both distracting and can be perceived as providing immediate feedback about the quality of one’s signing. However, ignoring the voice over is a skill which is quickly learnt.
5 When hearing staff avoid signing in meetings, their signing skills will suffer.
i) In mental health care most deaf staff are Health Care Assistants and work shifts, so the majority of staff in a meeting will be hearing. Meetings are one of the few places where staff could, in principle, observe their peers signing and this would make the different competencies and styles of signing within the staff group more transparent. In this way staff would be able to realistically appraise their own signing skills. When the only staff seen signing are deaf native signers, one’s confidence inevitably vanishes. With our confidence goes our inclination to sign at all, and an environment is established in which it is impossible to gauge one’s own signing competence by comparison with hearing staff.
ii) Equally, it is impossible for staff to receive objective feedback about their signing competence from the rest of the staff group. Such feedback would be both positive and negative, but both forms are constructive and lead to increased signing competence, increased signing confidence, and increased signing. In this way the vicious circle of lack of feedback leading to decreased confidence leading to less signing leading to less feedback can be reversed into a positive cycle of objective appraisal leading to increased competence leading to increased confidence leading to increased visible signing leading to further appraisal.
What can be done about this?
In my opinion this can lead to an anti-sign culture which is both oppressive and disheartening. Seeing others signing can enable everyone to feel confident about their skills, and to realistically appraise their own weak areas.
There will inevitably always be a number of staff who correctly feel they cannot sign in these situations - but interpreters are available to allow those people access to the meetings. At the moment interpreters are used to avoid exposing our signing skills to peer-review, to (consciously or not) oppress the deaf staff and clients, and to pretend that we are enabling equal access when in fact we are not. We should be using interpreters solely to support those staff who do not yet sign, and we should respect interpreter time in order that those staff have equal access to both the information and the discussion.
It is my view that:
From the Psychology Department Newsletter June 2004.
Using an Interpreter
It is almost entirely true to say that in psychology if you can’t talk to your client you can’t do your job. It is certainly entirely false to say that with an interpreter (of any language) you can get on with your job ‘as normal’. The immediate impact of a third party is probably obvious – dynamically, temporally (with spoken language interpreting, being sequential), and transferentially (particularly with BSL interpreters where the client’s emotional relationship is often more powerfully with the interpreter than the clinician). Alongside these more immediately apparent difficulties lies a more pervasive problem of accurate communication, understanding, and - for want of a better term – empathy. While the relation between language and thought is a complex one, it is nevertheless fairly clear that expressed language in any modality is an encoded version of the concepts intended by the person speaking. Just as the vocabularies of two languages never perfectly correspond, so the vocabulary of one’s own language only approximates the “vocabulary” – the concepts – of our thoughts. When I talk to you I am encoding my thoughts, ideas, beliefs into English. This is a process of translation / interpretation which necessarily loses information. When you read my English you attempt to decode the meaning using the phrasebook of your pre-existing understanding, beliefs and expectations. This again is a process of interpretation. Between my ideas and your understanding of them (even supposing I am making sense, possibly a moot point) there is already considerable potential for miscommunication, and we share a common language. It is likely we share a common “culture” too – that of western psychiatry and medicine (like it or not). When working with a client who speaks a different language from you, the interpretation between those languages is variably, and sometimes considerably, prone to information loss or distortion just from a lack of vocabulary equivalence. In addition, you and the client will likely come from different cultures – ‘culture’ meaning in this case not just sociological and anthropological differences but cognitive and conceptual ones. A Chinese person explaining parenting to you in terms of “guan” is presenting a concept alien to Western Europe and not a part of western psychological parenting work. The biggest pitfall of using an interpreter is assuming that you do not only understand what the other person is saying, but also what they mean. This pitfall is not confined to interpreting situations.
Interpreters can work in a variety of different ways, the simplest model of which being a notional continuum of verbatim translation to interpretive meaning - or from a word-for-word level through noun-phrase, sentence, paragraph levels to whole document/speech/session levels. The lack of lexical correspondence between two languages renders verbatim interpretation a nonsense, and the other end of the continuum leads to practical difficulties. However the model is useful when considering what you want the interpreter to do.
Psychosis
Conducting a psychological assessment of a psychotic client using an interpreter is arduous. The only time it does not feel that way is if you are not aware of the complications that the interpretation is bringing to the assessment. Interpreters constantly tread a line between ‘telling you what the person said’ and extracting meaning from the utterance and presenting that – and you don’t know which they are doing! Quite often the absence or distortion of meaning is the clinically relevant feature, but it is the task of the interpreter to understand and, quite professionally, they may clarify and clarify with the client until meaning is found in the language when potentially there was none there to start with. With no clear word-for-word translation possible, how can one interpret word salad, for example? Conversely, if the client appears to make no sense how can thought disorder be distinguished from communication difficulties or difficulties of interpretation? Without an interpreter there are still, of course, two interpreting processes going on…
Voices
Nascent employees of the Deaf Directorate almost always learn within a matter of days that prelingually and profoundly deaf people with psychotic disorders hear voices. In a service that, upon recruitment, immediately deskills us, fascinating titbits such as this are survival aids. This assertion is rarely questioned, and much has been written about the neuronal activity of deaf hallucinating psychotic people, the phenomenology of deaf psychotic voices, and so on. Perhaps obviously to those outside of this field, the assertion makes no sense. Clinically I have rarely if ever managed to have a (one to one) conversation with a deaf person said to hear voices where the deaf person has been able to describe the pitch, timbre, vocabulary, volume, or location of the voice. Even if there were some way of demonstrating (with a magical functional MRI) that the person really was experiencing an English-speaking female voice of rather low volume, telegraphic prosody, commenting on her clothes from behind her - volume, prosody, the gender of the voice and auditory location are not things that a prelingually profound deaf person could reliably report upon.
Could it be that asking specific questions about such symptoms gives the client (deaf or hearing) a lens through which to evaluate quite probably chaotic and confusing internal experiences? Why do we trust the report of a prelingually profoundly deaf person on the nature of their psychotic experiences when that same client, at the same time, is not able to reliably report upon where they think they are or who they are talking to? Psychotic experiences may well be (who knows?) the cognitive equivalent of dropping all the pages of your thoughts in a puddle and reassembling them, soggy, in the wrong order. The process of encoding those experiences must be even more prone to misrepresentation than non-psychotic mental phenomena. In the context of a clinical interview, deliberately or otherwise asking questions which are even only slightly leading (“Do you sometimes hear a voice that seems to come from nowhere?”) is equivalent to showing a Rorschach blot and asking “Do you see a bat?”
The ABC model of voices suggests the voice is an activating event triggering beliefs about it. Quite possibly the voice is delusional as well. But what’s the difference?
Often mental health services, particularly inpatient teams, use the language of the mental health act when discussing patients, not just the detained ones. I think this is unhelpful because a) it is misleading, but b) because it reflects a mindset that detention and the restriction of patients’ liberties is the norm, when in fact it is the exception. Even if the majority of patients are detained, we should still maintain the attitude that detention is the departure from normal practice in the extreme situations that the MHA is intended to cover.
As examples, we never hear of patients (non-detained) saying that they are going home for the weekend – instead it is always that x is requesting leave and is that OK. We know that it is not our decision and that x can go whenever he likes, but the default perspective that we are in charge of / responsible for other people when we are actually just offering a service they can take or leave I think is damaging. It is worse still if x really thinks he has to ask, and not just that it is being reported in the language of the MHA.
Also we hear a lot in discussions of non-detained patients that “well we can’t detain him” as if there is an air of regret around that! It scares me that we have to think on our feet about ways to cope with the fact that we can’t just force the person to comply. That somebody is undetainable is a good thing, in my opinion, and that people who are detainable are so for reasons that are awful for them (that is, they need detention in their own best interests for specific reasons, that they are horribly ill and pose a risk to themselves or others.) If we regret that a person may not be detained, that suggests that we are losing the ability or the willingness to work with people collaboratively and that would be terrible.
I would be the first to roll my eyes at the political over-correctness of identity politics, for example levering in the word “people” after politically sensitive adjectives makes my flesh creep, however my concern here is that language use not only reflects, but influences our mind-set and attitude towards the people we work with, most powerfully in the way trainees, students and new staff absorb assumptions that it appears from our language that we make.
There are very very few psychometric instruments available for use with prelingually profoundly deaf people. When testing such people therefore, there is a great deal to be borne in mind.
The most important point to consider is that of the validity and reliability of the tests used, both in and of themselves, and as a result of any changes that would need to be made to the formal administration in order to communicate the task to the client. Four main questions can help with this:
1. Does the test consist of verbal test items or performance items? Verbal items are inappropriate for deaf people, particularly prelingually deafened. Such people usually have difficulty with English syntax and vocabulary independent of cognitive function, as a result of English being a purely visual (and unspoken, and therefore considerably less frequently encountered) language for deaf people. Deaf people’s mean reading age (compared with hearing peers) has been estimated to be at the 3rd or 4th grade level irrespective of intellectual function.
2. Do instructions for the test require verbal communication? This is important even if the tasks themselves are considered to be “performance” tasks. For those measures that offer little or no flexibility in the way in which instructions are presented (such as the WAIS-III), departure from the formal administration departs also from the standard administration with the normative sample and comparison with that sample then becomes misleading in ways that cannot be predicted or allowed for. The same problem is more frequently met when comparing hearing people tested in the formal manner with those tested with more flexible instruction.
3. Do any test items discriminate against (or for) an individual with an auditory impairment? Test items may discriminate directly or indirectly against, or for, deaf people. Those that discriminate against are more common, but both for and against present problems of comparison with a normative sample. An immediately obvious example would be from the Vineland Social Maturity Scale which contains an item “Makes Telephone Calls”. Clearly this would underestimate the individual’s functioning. Perhaps less obviously, but equally critical, an attempt to address the cultural validity of this item by converting it to “Makes Minicom (Textphone) Calls” still underestimates the ‘true’ level of functioning since a deaf person’s experience of using a textphone differs entirely from a hearing person’s with a telephone (in terms of when one is first seen used, how often they are seen on TV, and so on.) Similarly there is some evidence that BSL users are advantaged when using the block tapping tasks (such as Corsi’s) – but advantaged in such a way that disappears when the person sits alongside the examiner instead of opposite.
4. Are deaf people included in the normative sample provided by the test developer? Apart from a very select handful of tests the answer to this question is always no. Norms for deaf people are rarely provided. There are good arguments for and against comparing this deaf person with deaf or ‘hearing’ norms, and the answer depends on the reason for testing. However there is only ever an argument for ‘hearing’ norms if that normative sample contained deaf people in equal proportion to the population of concern and that the results from that sub-sample are demonstrably as reliable as those of the hearing subjects. Such norms are rarely if ever established, and prelingually profoundly deaf people are more likely to be formally excluded from the normative study. The interpretation of results of clients who do not mirror individuals for whom the test was designed must therefore be explicitly cautious.
These main areas make the assumption that communication with the client, in sign, is unproblematic – that is, that the assessor is able to sign. When that is not the case, further issues of the reliability of the interpretation are raised:
5. How reliable is your communication support? The ability of the interpreter(s) must be stated in the report and considered when interpreting the results. Even if the interpreter is Level IV accredited and a registered Sign Language Interpreter, which ought really to be the only acceptable standard for psychometry, the reliability of the interpretation will decline significantly after 35 minutes. Two interpreters should be used and regular breaks should be introduced (which can itself conflict with a formal test administration). Interpretation will always add to the error in the estimated level of function, and it is impossible to say whether it contributes to an over- or an under-estimation. The extent of this error is, in part, a function of the competence of the interpreter(s).
6. How reliable is perfect communication support for this measure? Even if the communication support is 100% perfect (and this is in truth only available in our imagination) then it is important that each item of each test be discussed in advance with the interpreters. (There is no such thing as a perfect translation. There can be a best translation but that is hard to find and is only a “working-best” until a better one is noted in the future.) However, even supposing perfect interpretation, the assessor must be fully aware of the nature of the signed administration in order that the psychometric equivalence of the standard and the signed administration of that item can be judged. For example, the Similarities subtest of the WAIS-III contains the question, in English, “In what way are a coat and a suit alike?” It is fairly easy to translate this into a British Sign Language equivalent with little debate. However the nature of the most common signs for coat and suit make it self-evident that both are articles of clothing – a response which receives maximum points. Conversely the signs ‘rhyme’ in terms of both being bimanual and symmetrical, sharing the same location in space, employing very similar movements, and handshapes differing only in terms of thumb position. It could be argued that these phonological similarities are unreasonably misleading and/or that they imply alternative false answers (the location of both signs is commonly used for emotions) in a way that the spoken English items do not.
These concerns all contribute unknown amounts of error to the estimated level of whatever psychological construct is under scrutiny (such as intellectual function). In addition the ways in which these concerns may be addressed (that is by departing from standard administration in a variety of ways) also contribute error to the estimate. The magnitude of this error and the overall direction of it are both unknowns and lower the reliability of the obtained results.
The validity of obtained results remains in question when the normative sample is exclusively hearing.
Generally, examiners should be advised to:
• Assess the deaf person with support from qualified British Sign Language Interpreters.
• Discuss each item of each test in advance with the interpreters, and afterwards such that any instances of note may be raised and accommodated in the interpretation of the results.
• Consider which, if any, tests to use in the light of points one to four above.
• Interpret results with extreme caution in the light of points one to six above.
• Make each of these shortcomings explicit in the report such that future readers will not jump to erroneous conclusions.
• And generally to assume that obtained results reflect a hypothetical minimum value, and never imply a ceiling to the individual’s ability or potential.
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